Real-world healthcare utilization in adult congenital heart disease: a systematic review of trends and ratios
Responses to classmates must consist of at least 350 words (not including the greeting and the references), do NOT repeat the same thing your classmate is saying, try to add something of value like a resource, educational information to give to patients, possible bad outcomes associated with the medicines discussed in the case, try to include a sample case you’ve seen at work and discuss how you feel about how that case was handled. Try to use supportive information such as current Tx guidelines, current research related to the treatment, anything that will enhance learning in the online classroom. Adult Congenital Heart Disease The topic chosen for this discussion question is the increase of Pediatric Congenital Heart Disease patients that are entering adulthood. This population is becoming older and reaching adulthood due to advancements in healthcare and technology. For instance, the use of axial flow ventricular assist devises to treat congenitally corrected transposition of the great arteries with right ventricle support (Tanoue et al, 2016.) There are many needs related to dealing with complex congenital diagnoses as well as comorbidities. These needs can include but are not limited to additional therapies and issues related to coverage related to the healthcare that they require over the span of their life. There are also instances the patient can have additional diagnosis associated with their development and behavior (McClung et al, 2018; Chen et al, 2018). There is information that can be viewed on websites that support advocacy efforts related to increase funding and awareness. The Congenital Heart Disease Coalition assist in endeavors related to this topic by supporting activist efforts such as the Congenital Heart Futures Act (O’Hara-Rusckowski, n.d.).There are also issues related to the lack of accessibility of care that is needed for specific congenital heart lesions (Geradin et al, 2019). The Adult Congenital Heart Disease Association promotes survivability and serves as a resource for all affected. The association also provides educational opportunities related to this specific patient population (Adult congenital, n.d.) The information for this topic on CINAHL is up to date. There were articles present related to the topic specifics. There were many articles geared to care. There were also articles related to the increase in patients living with pediatric conditions into adulthood. There was additional article information related to their transition into adulthood (McLoughlin et al, 2018). There was also an article related to the parents’ and caregivers’ role as the pediatric patient becomes an adult (Bratt et al, 2018). There was an article that included information related to the increase of Adult Congenital Heart Patients as a whole, the trajectory of the growth as this persons enter adulthood, and their utilization of healthcare (Willems et al, 2019) References Adult Congenital Heart Association. (n.d.). About Us. https://www.achaheart.org/about-us/ Bratt, E. L., Burström, Å., Hanseus, K., Rydberg, A., Berghammer, M., & On behalf on the STEPSTONES‐CHD consortium. (2018). Do not forget the parents—Parents’ concerns during transition to adult care for adolescents with congenital heart disease. Child: Care, Health & Development, 44(2), 278–284. https://doi.org/10.1111/cch.12529 Chen, M., Colarusso, T. , Yeung, L., Smith, C., & Farr, S. (2018). Children with Heart Conditions and their Special Health Care Needs- United States 2016. 67(38). 1045-1049. https://www.cdc.gov/mmwr/volumes/67/wr/mm6738a1.htm?s_cid=mm6738a1_w Geradin, J., Rawskind-Hood, C. , Rodriguez, F., Hoffman, T., Kalogeropoulous, A., Hogue, C. & Brook, W. (2019). Lost in the system? Transfer to Adult Congenitial Heart Disease Care- Challenges and solutions. Congenital Heart Disease. 14(4). 541-548. https://onlinelibrary.wiley.com/doi/abs/10.1111/chd.12780 McClung, N., Glidewell, J., Farr, S. (2018). Financial burdens and mental health needs in families of children with congenital heart disease. https://onlinelibrary.wiley.com/doi/abs/10.1111/chd.12605 McLoughlin, A., Matthews, C., & Hickey, T. M. (2018). “They’re kept in a bubble”: Healthcare professionals’ views on transitioning young adults with congenital heart disease from paediatric to adult care. Child: Care, Health & Development, 44(5), 736–745. https://doi.org/10.1111/cch.12581 O’Hara-Rusckowski, D. (n.d.). Michelle S. Wilder. Nurses with Glocal Impact, Inc. Empowering Through Education. https://nurseswithglobalimpact.org/nurse-honorees/2019-nurse-honorees/michelle-s-wilder/ Tanoue, Y., Jinzai, Y., & Tominaga, R. (2016). Jarvik 2000 axial-flow ventricular assist device placement to a systemic morphologic right ventricle in congenitally corrected transposition of the great arteries. Journal of Artificial Organs, 19(1), 97-99. doi:http://dx.doi.org/10.1007/s10047-015-0866-5 Willems, R., Werbrouck, A., De Backer, J., & Annemans, L. (2019). Real-world healthcare utilization in adult congenital heart disease: a systematic review of trends and ratios. Cardiology in the Young, 29(5), 553–563. https://doi.org/10.1017/S1047951119000441
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